Throughout this series, we have explored Angelman syndrome (AS) and the work of Spread Your Wings, a charity dedicated to supporting individuals living with this rare genetic disorder. AS affects the nervous system, leading to developmental delays, speech impairments, and movement challenges. However, a diagnosis does not define the individuals themselves.
While no two people with Angelman syndrome are exactly alike, many share a remarkable trait—an infectious tendency to smile and laugh. The reasons behind this are not fully understood. It may be a heightened response to sensory stimuli, or anon-verbal way of expressing emotions and engaging with the world around them. Whatever the cause, their joy is deeply contagious. The excitement they show at the sight or sound of a familiar person is both heartwarming and uplifting, making everyone around them feel special.
Another common characteristic of individuals with AS is a fascination with water. Whether it’s playing in sinks and puddles or a deep love for swimming and splashing, water holds an undeniable attraction. This may stem from the sensory experience—the feel of water, the sound of splashing, the reflections of light, and even the calming effect it provides. While this love for water is a source of great joy, it also requires careful supervision, as many individuals with AS have little sense of danger.
Despite the challenges Angelman syndrome presents, it also brings unique and beautiful moments of connection. Those with AS are more than their diagnosis—they are vibrant, affectionate, and full of life. Their laughter, energy, and perspective remind us to cherish joy in its simplest forms.
With dedicated families and caregivers, supported with the right equipment, therapies and knowledge, individuals with AS can lead their best lives, bringing happiness to those around them. By raising awareness and fostering understanding, we can help build a world that embraces and supports the unique strengths of those living with Angelman syndrome.
If you would like to know more about Angelman syndrome and the work of Spread Your Wings, please visit our website. If you can help us in any way, get in touch and if you can give any money, please donate, We know that not everyone can do this, but please sign up for our newsletter and follow us on social media.
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